Question:
Hello,
I'm new here.
I have had CFS for 10 plus years.
Just recently I suffered a relapse which is now over 2 months.
I am wondering if this is a common occurence? I have been fairly well (operating at about 80% most of the time) for over the last 3 years.
Any commentary would be greatly appreciated.
Thanks
dmg
Answer:
I can relate to a relapse in illness. I had suspected glandular fever (mono) when I was 17/18, got over it within a year, had five years of feeling well (no symptoms of any kind) and then last year I got ill again. Very similar symptoms to last time but as I recognised them I didn't do what I did last time, which was to shut down and do nothing. Although it looks now like it could have been my thyroid playing up all the time, I think recurrent bouts of CFS are quite common and there have already been posters on this forum describing recurrent bouts of mono.
All I can say is that if your body managed to fight it before and get you to 80%, then I'm sure it'll do so again.
kiya
Answer:
Hello,
I'm new here.
I have had CFS for 10 plus years.
Just recently I suffered a relapse which is now over 2 months.
I am wondering if this is a common occurence? I have been fairly well (operating at about 80% most of the time) for over the last 3 years.
Any commentary would be greatly appreciated.
Thanks
dmg
Yes, to the "common occurence". That is a characteristic of the virus - to produce periods of remission and flares.
Answer:
The Same Happened To Me I Had 2yrs Remission And Operated On 80% I Got Married Went Abroad Out All The Time, It Was Always Background But Not So Severe I Think That What Happened Is Rather Than Take It Easy I Got A Bit Excited And Burnt Myself Out Again When I Relasped It Was Horrendous,worse Then Before The Remission If You Feel Your Symptons Comming Back Please Take It Easy And Rest As Much As You Can I Have Had M.e For 16yrs Now But I Do Feel More At A Better Even Level At Least I Have For About 6months So Fingers Crossed It Might Happen Again I Think The Hardest Thing To Do Is Pacing Yourself Its So Frustrating When There Are Things To Do
Answer:
hello,
i just joined this group today...I had a very negative and rude experience with another web-site so was hoping I could find others like me . I contracted Mono. in England while on vacation when I was 18. I had 2 severe relapses and have never, ever been the same since. I was just diagnosed with Active Mono. again on July 13th. I have not left the house since and feel worse now than I did then. I have also had periods of wellness over the years, and have learned to try to be moderate when I do feel well so that I don't invite trouble. I believe what we are all going through is what the docotors call "standard" for the problem. However, I too , am disgusted by the lack of compassion, understanding, or willingness to help. I have severe migraines and they are made worse by CFS. I am so sorry to see so many of us suffering from this...I was amazed when I saw the number of posts on this site! I try to keep my spirits up...but it is difficult when you are cut-off from fun and the outside world. Also, I woud like to say that I am 37, and have dealt with this over half of my life ...and I too had to drop out of college...was going to return this September...but will have to wait again. If there is any question I can help with, I will be glad to answer it...I just wanted you to know you are not alone...I think that is the worst part...the loneliness.... as our loved ones trudge off to work and school, we sit and feel miserable until they return. I hope we can all be friends and support each other..........it would surely take some of the heartache away. thanks for reading my post. must sleep now, sorry.