Question:
Just wondering how you are doing, pinkmada. I hope you have been able to make some decisions about uni and that you are coming to terms with the news of your diagnosis. It does get easier to deal with.
Love and prayers,
Answer:
Thanks, I'm still feeling really numb from it all. I get my results for the bone marrow test back on wednesday so fingers crossed it's all ok. I don't think i can cope with anymore bad news just now. I was reading about the budwig diet on the net a few nights ago and it was so negative about other treatments and i sat in floods of tears for hours, i really wish i hadn't looked it up, it didn't help in the slightest it only made me think about things that i don't want to just now.
Anyway, i have a question about the chemo that i keep forgetting to ask my doctors, i know that my hair is going to fall out and i'm not that upset about it just now, i'm sure i will be when it happens but i'm more worried about the fact that i have a phobia of throwing up, anyway, is it just the hair on your head that falls out or is it everywhere? I'm trying to stay positive and the thought of not having to worry about shaving my legs or having stubble all summer is a good, stupid, trivial thought.
Answer:
Hi. I have a form of lympoma call CLL. I am under going chemo call CHOP. My hair did fall out, but I did not get sick. A little fagitue second day and maybe my stomach rolled a litle on 3rd day, cured that with eating small meals and keeping something in my stomach, ginger ale helps. After that I am fine. Just try to stay away from public places and people with colds and flu. And just try to be easy on yourself.
Just think this experience will make you a wonderful nurse. If you tell the nurses that you are going to nursing school they will want to teach you things. Or tell why things are being done. I know because I am a nurse myself. Keep us informed.
Take care
Answer:
Hey thanks guys, i'm feeling loads better today, was sick a couple of times yesterday with it but hopefully that's the worst over.
I'm at stage three, no-ones told me exactly how many places but i think it's two, around my spleen and under my right arm.
I'm going in for my second lot of treatment on friday, i'm not scared about the treatment, i was the first time because i didn't know what to expect and now i do but it's the ward/room that i get it done. It's like a small ward but with chairs instead of beds and everyone is just sitting there with the drips and everyone is on there own and i couldn never go there on my own. Everytime i'm in that room (4times so far) i've burst into tears, i don't know what it is, if it's the realisation that im really ill and in for treatment or because i've been the youngest person there so far and everyone else looks like they are dying and i really dont need to be in a room full of people like that just now (sorry if that was really insensitive) but i can't cope with being in that room. The nurses must think i'm pathetic, i know i could never go and get treatment on my own, i couldn't deal with it.
Sorry for the long rant again.
x
Answer:
you are not pathetic in any way. you are a young woman with a lot on your plate. You are very courageous just doing what you have to do. God Bless and you keep your chin up! Keep us posted!
D